Mrent Project Muscular Dystrophy Message Board

Forum name Topics Posts Last post Duchenne Muscular Dystrophy Announcements and News (READ-ONLY) Check here for information for newly diagnosed people, how you can help, and general news and announcements. READ-ONLY Moderators: Kimberly_Galberait, Rfischer, Pat_Furlong, Forum Admin 18 18 04/02/08 at 8:14pm by Brian Denger What are You Thankful For? We invite you to tell us what you're thankful for. Please feel free to share your thoughts, feellings, or whatever else may come to mind on this Thanksgiving. Happy Thanksgiving ! Warm Regards, PPMD Moderators: Kimberly_Galberait, Rfischer, Pat_Furlong, Forum Admin 2 39 05/19/08 at 1:35pm by papagrape21 Awareness Week This message board is a great way for people to connect with one another regarding their Awareness Week events. We hope that first time event hosts will post any questions and that experienced event hosts will post advice to help those who are new at this. If you need help, have advice or suggestions, or wish to recruit volunteers for your local event, please post your comments here. Moderators: Kimberly_Galberait, Rfischer, Pat_Furlong, Forum Admin 16 47 04/23/08 at 3:03pm by cmcliff 'RUN FOR OUR SONS' TEAM The Walt Disney World® Marathon and Half Marathon is just around the corner. This message board is a place where all of our participants, from those running in sneakers to those running in spirit, can discuss training techniques, fundraising efforts and questions leading up to the big day. Moderators: Kimberly_Galberait, Rfischer, Pat_Furlong, Forum Admin 55 542 07/23/08 at 12:31pm by MicahsDaddy Social Isolation Sooner or later, most boys with DMD suffer from some degree of social isolation. This thread is dedicated to helping parents find rewarding activities and friendships for our boys. What do you do to alleviate your son’s social isolation? How did you go about finding what resources exist in your own community? How did you get your son’s school to create an after school theater club? Who did you have to talk to? What obstacles did you encounter? How did you surmount them? If enough parents contribute to this thread, there will be plenty of good, time-tested ideas - some mainstream, some downright eccentric - that will appeal to a wide variety of ages, tastes and talents. Moderators: Kimberly_Galberait, Rfischer, Pat_Furlong, Forum Admin 36 329 05/31/08 at 7:56am by fryhouse Grandparent Forum This is a place for grandparents, parents, and anyone else interested in discussing issues that arise in Duchenne Families. We hope this forum brings about some much needed dialogue in the community. Bring your strength, your ideas and your wisdom. Lets Chat! Moderators: Kimberly_Galberait, Rfischer, Pat_Furlong, Forum Admin 11 59 07/22/08 at 3:02pm by tommamay Fundraising This message board is a great way for people to connect with one another on issues relating to grass-roots fundraising. If you need help, advice, suggestions, wish to recruit volunteers, or have items (or time) to donate, please post your comments here. Moderators: Kimberly_Galberait, Rfischer, Pat_Furlong, Forum Admin 131 534 07/14/08 at 9:44pm by realthomo Research, treatment, and care issues This message board is for the discussion of Duchenne muscular dystrophy (DMD) research, treatment and care issues. Please note that the ideas posted below are the views of the individual, who may or may not be a licensed professional, and are not endorsed by Parent Project Muscular Dystrophy. Please consult with your doctors before implementing any treatment suggested here. Moderators: Kimberly_Galberait, Rfischer, Pat_Furlong, Forum Admin 1222 10503 07/14/08 at 9:45pm by realthomo Access and disability issues This message board is for the discussion of access and disability issues that people with or affected by DMD face. We encourage participants to share constructive experiences and ideas that others may benefit from on topics such as making your home wheelchair-accessible, car and transportation issues, issues related to insurance coverage or eligibility to participate in federal or state-funded programs, etc. Disclaimer: Parent Project Muscular Dystrophy does not warrant, promote, endorse, or recommend any of the items listed on this message board. All items for sale, exchange or offered as free are by private individuals. All sales, deliveries, and receipt of items are to be arranged directly between the party selling and/or giving, and the receiver and/or giving of the item. Parent Project MD accepts no involvement in the exchange or sale of any item. For private use only, no commercial agents may post on this forum. Moderators: Kimberly_Galberait, Rfischer, Pat_Furlong, Forum Admin 189 1542 07/13/08 at 5:57pm by mommalori Coping Coping with DMD- its diagnosis and its daily realities- can be challenging. This message board is for the discussion of feelings that people with or affected by DMD experience, and techniques they use to help. We encourage participants to share constructive experiences and ideas that others may benefit from. Moderators: Kimberly_Galberait, Rfischer, Pat_Furlong, Forum Admin 468 4364 07/19/08 at 1:40am by Joshuas_mom School issues This message board is for the discussion of school or education-related issues that people with or affected by DMD face. We encourage participants to share constructive experiences and ideas that others may benefit from on topics such as how to explain DMD to a teacher, peer issues, etc. Moderators: Kimberly_Galberait, Rfischer, Pat_Furlong, Forum Admin 129 1209 07/13/08 at 10:58pm by fishin911 Advocacy This message board is for the discussion of Duchenne muscular dystrophy (DMD) advocacy issues. Parent Project Muscular Dystrophy has achieved many successes over the last few years at the federal level because of your efforts. Thanks to the willingness of PPMD advocates to give of their time and energy we have had opportunities to increase federal funding for Duchenne research by building partnerships with federal agencies and in the U.S. Congress. We encourage advocates to share their experiences on building relationships with their Members of Congress. If you have any questions on how you can become involved in federal advocacy or would like to do more, please post your comments here. Moderators: Kimberly_Galberait, Rfischer, Pat_Furlong, Forum Admin 99 785 07/22/08 at 3:18pm by JCGarcia Grief and Loss Dealing with the loss of a loved one to Duchenne can be overwhelming. This string is dedicated for those who wish to share their feelings with others who have experienced loss and hopefully find comfort knowing that you are not alone. Moderators: Kimberly_Galberait, Rfischer, Pat_Furlong, Forum Admin 18 163 07/16/08 at 7:39pm by alexsmum

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